Heart transplant patient dies days after marrying high school sweetheart

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December 5, 2019 - 9:41 AM

Javi Rodriguez and Crystal Cuevas exchange vows during their wedding before family, friends and medical staff Wednesday, Nov. 27 in the chapel at the University of Chicago Medical Center. (Brian Cassella/Chicago Tribune/TNS)

CHICAGO — A heart transplant patient who married his high school sweetheart last week in the chapel at the University of Chicago Medical Center died Monday, days after leaving the hospital, his family said Wednesday.

Javier Rodriguez, known to his family and friends as Javi, was 23 years old. He had familial dilated cardiomyopathy, a genetic disease that predisposes victims to develop heart failure at a young age. He had two heart transplants, one when he was 14 and another when he was 18.

His most recent physician, Dr. Bryan Smith, said Rodriguez was not eligible for a third heart transplant because he had acquired infections and had kidney dysfunction.

After his most recent stay in the hospital of 43 days, Rodriguez returned home and went into hospice care Friday, a day after officials originally had thought he might go home.

Two days before he went home, he married his longtime girlfriend, Crystal Cuevas.

Cuevas said she met Rodriguez through mutual friends when they were both juniors in high school.

“He had this aura to him,” Cuevas said. “He walked into a room and you smelled confidence.”

Since then, she’s accumulated “hundreds of (hospital) passes,” she said.

The weekend before their wedding, Rodriguez told Cuevas that he decided he wanted to go into hospice care, she said. “I always try to keep it together in front of him, but that day I couldn’t.”

She thought of their 3-month-old daughter, Leia. “I didn’t grow up with a dad, and that’s the one thing I always wanted to give my baby girl and that’s what he wanted,” she said.

They tried to “fit in as many pictures and videos and all of that as possible, so that she’ll never think that she didn’t have a dad.”

The day before the wedding, Smith said, Rodriguez talked about what he wanted to do in his last few days and told Smith “he wanted his tombstone to say ‘husband.’” Hospital staff scrambled to make marriage arrangements, baking a three-layer strawberry cake and decorating the chapel with silver ornaments and white balloons.

Funeral arrangements for Rodriguez will be private, Cuevas said. 

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