Struggling to socialize with illness

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March 11, 2019 - 10:14 AM

Dear Carolyn: I am chronically ill but work full time and am literally able to do little else other than work and take care of my home. Socializing is exhausting for me, doing it out of the house more so, and even when it is wholly limited to weekends, too much means I can’t go to work on Monday.

I’ve lost nearly all of my friends due to this — even a woman whose wedding I was in just under two years ago now rarely calls. How does one remain social when people don’t really want to be friends with someone who is ill and often housebound? — Can’t Socialize

Answer: I’m sorry you’re in this position, and your friends haven’t been willing to accommodate you more.

Or maybe they are but you haven’t asked for that explicitly? It happens often, that we think we’ve been clear on what we need but haven’t, and so people who would help us out don’t even know we want that from them, much less in what form.

So that’s my first suggestion — talk to your friends, with clear ideas handy. Follow up by inviting them to things you can do, when you can do them. “Come over Saturday, I’ll order takeout, I’ll just need help cleaning up.” It’s cosmically unfair that the person with the illness would have to take on extra work to get others to socialize, but I think the reality is, people just default to the nearest and easiest thing. Especially people who are busy or stressed with their own stuff.

So, anyone who doesn’t fall in the nearest/easiest part of the Venn diagram often has to figure out what works in their circle and then make the effort — on some manageably regular basis — to invite people into it.

If you’ve tried all of this already to no avail, then Suggestion 2 is to try to reallocate some of your limited energy to reflect friendship as a priority. Work is probably a fixed commitment, but what about “take care of my home”? Can that be a place to cut back? If not immediately, then long-term, with a lower-maintenance setup?

Work is work, but quality of life deserves a spot at the top.

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